8:00 am Coffee and Registration
8:55 am Chair’s Opening Remarks
Quantifying the Value of Patient Engagement to Develop a Measurement-Oriented Culture
9:00 am Measuring the Value of Patient Engagement to Demonstrate ROE to Stakeholders
Synopsis
- Exploring the challenges of quantifying and objectifying patient engagement for regulatory agencies and investors, focusing on the specific needs of regulatory bodies and investor communities
- Discussing the role of investors in the biotech industry and the potential influence of patient advocacy in encouraging investment by quantifying community interest in treatment options
- Emphasizing the need for a clear and standardized approach to quantify patient community interest, bridging the gap between patient advocacy and investor confidence in the biotech market
9:30 am Objectifying the Meaning of Measuring Patient Engagement to Internal Stakeholders
Synopsis
- Ensuring that all teams internally are using the same metrics and terminology in the same way to build a patient centric culture
- Discussing how to successfully instigate a change in culture to achieve leadership buy-in
- Evaluating how to ensure supportive and proactive help from leaders in promoting the measurement culture to elevate the importance of patient centricity internally
10:00 am Designing a Strategy to Drive the Implementation of Different Patient Engagement Approaches, Cross-Functionally
Synopsis
- Discussing the metrics and measurements for health equity strategy
- Leveraging patient engagement to gather patient experience data to enable successful conversations with regulatory bodies
- Exploring how to get leadership buy-in into the design and value of patient engagement, from early stage to investment
10:30 am Speed Networking Session
Synopsis
Join our speed networking session tailored for patient engagement experts, like yourselves, to connect with industry peers & facilitating rapid yet meaningful exchanges of insights & expertise. Elevate your networking experience during this session designed for impactful connections within the space of patient engagement
11:00 am Morning Break & Networking
11:30 am Quality vs Quantity in Patient Advocacy Metrics
Synopsis
- Exploring the industry’s challenges in finding metrics that go beyond numerical counts, particularly in assessing the impact of patient advocacy efforts
- Addressing challenges in getting colleagues to acknowledge the limitations of quantitative measurement tools within patient engagement
- Suggesting tactics to shed light on the effectiveness of qualitative data to convince stakeholders of its value
Building a Practical Roadmap Towards Standardized Metrics & Reporting
12:00 pm Standardizing & Systematizing Patient Engagement Through Impact Measurements
Synopsis
- Introducing Novartis Patient Engagement Impact Measuring Framework and how it connects to strategy
- Summarizing the challenges and learnings from the development of the framework and implementation of metrics so far
- Diving into impact of PE case by case, PSPs, PLE, PFDD
12:30 pm Lunch Break & Networking
1:30 pm Medical Evidence: Case Studies Measuring Qualitative Patient Engagement
Synopsis
- Reviewing the necessity of implementing patient engagement from study design to publication
- Providing case studies on how to practically embed patient voice by demonstrating key examples of the influence and impact of patient voice
- Striving to measure the impact along the continuum of health empowerment to demonstrate success in patient engagement measurement
2:00 pm Panel: Creating a Roadmap When There is No External Requirements to Measure Patient Engagement
Synopsis
- Discussing what the ultimate goal of measuring patient engagement is and why we are measuring it
- Exploring how to create a roadmap when there is not shared standard, internally or externally
- Highlighting what the roadmap should be based on, whether it is internal needs or regulatory guidance
- Debating whether we should be measuring patient engagement
2:45 pm Afternoon Break & Poster Session
3:15 pm Patient Panel: Patients as Partners: What is Genuinely Valuable for Patients & How Can We Better Integrate Patient Feedback to Ensure More Patient-Centric R&D
Synopsis
- From consulting before trials to post-approval communications, how effectively are we measuring patient engagement?
- Discussing whether current measurements are sufficient
- Exploring ways to improve patient engagement in the future
4:00 pm Roundtable: Overcoming Social Media Algorithmic Changes to Enhance Measurement Precision of Engagement Source
Synopsis
- Navigating the ever-changing algorithms of platforms like Facebook for targeted patient engagement
- Utilizing advanced analytics tools to measure ad impact through metrics like clickthrough rates and website engagement
- Implementing patient feedback mechanisms to identify the source of engagement, enhancing measurement precision
- Exploring alternative engagement avenues such as collaboration with hospitals and specialized educational tools