Welcome to the Measuring Patient Engagement Summit Blog
Click to explore all of our content related to the 2026 event.
A Deep Dive into Pfizer’s Rare Disease Engagement Framework
Behind the hemophilia model that exceeded all brand activation goals and influenced senior leadership decision-making, ultimately expanding the model – metrics turned advocacy into a strategic priority
CISCRP’s 2025 Perceptions & Insights Study – Trust, Drivers of Participation, & Retention
Explore CISCRP’s framework for understanding what matters most to participants at different stages of the trial lifecycle, from awareness and decision-making, to retention, and post-study communication
Our Sit-Down with Kyverna Therapeutics' Executive Director of Patient Advocacy
“What I always value most about gatherings like this is the opportunity to learn from others who are tackling the same challenges from different perspectives – patient organizations, industry teams, researchers, and engagement leaders…”
Genentech & Why Patient Engagement Is So Important Right Now
“Patient engagement has shifted from a nice-to-have corporate social responsibility to core evidence for regulatory and commercial teams…”