Panel Discussion: Amplifying Patient Advocacy Impact to Drive Measurable Outcomes

• Best methods for partnering with ultra rare and larger rare patient organizations that maximize measurable outcomes and build-in evaluation components
• Collaboration on data collection from external patient advocacy initiatives without breaching compliance
• Supporting patient engagement efforts that maximize community impact while demonstrating value to your organization
• Understanding the value of building meaningful relationships with Patient Advocacy Organization that lead to successful outcomes for patients and your organization

Speakers:

Fatima Scipione

Vice President, Global Patient Affairs

Blueprint Medicines

Kari Rosbeck

President and Chief Executive Officer

TSC Alliance

Shalome Sine

Senior Manager & Qualitative Insights Specialist

Center For Information & Study on Clinical Research Participation